OUR MISSION
EB Research Partnership is the largest nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth.
EBRP works to treat and cure EB as quickly and efficiently as possible, fulfilling our mission through partnerships with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities.
Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
Leading researchers say treatments and a cure for EB are within reach. Though we have made significant progress, we need much greater resources in our pursuit of a cure.
OUR HISTORY
EBRP was founded in 2010 by a group of dedicated parents committed to saving their children's lives and close friends Jill and Ed Vedder, of Pearl Jam.
THE SILVERS |
THE VEDDERS |
THE FULLMERS |
BY THE NUMBERS
