EB Research Partnership is the largest nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB).

Epidermolysis Bullosa (EB) attacks the skin — not just the skin we see, but also the skin inside of us. The resulting wounds never heal. Disfigurement, blisters, bleeding, and ever-present pain follow. 

It is lethal for many of the children born with it.

But that is changing. Through the hard work of scientists, we’re on the precipice of a cure. Not only that, but the methodology we’ve pioneered to develop a cure holds the key to helping millions suffering from rare diseases.

“It’s about the most insane skin disorder you can imagine. And when you realize it also affects the internal organs, then you see it as diabolical.”

- Eddie Vedder, EBRP Co-Founder

THE VENTURE INTO CURES METHODOLOGY

A POWERFUL BLEND OF BUSINESS DISCIPLINE AND SCIENTIFIC RIGOR.

We find the most promising research projects. We vet them through our world-class scientific advisory board. Then, in exchange for funding them, we take a financial interest in the work of the university or business.

When those projects succeed, we reinvest the returns from our shares back into other promising EB research projects.

That means every dollar invested is multiplied — potentially many times over.

Learn More About Our Model

A CURE FOR EB IS WITHIN REACH TODAY.
CURES FOR 7,000 RARE DISEASES CAN BE TOO.

EB is just the beginning.
​We believe our method and model can accelerate how cures are found for 7,000 diseases impacting 350,000,000 people worldwide.

95% of Rare Diseases Have No Approved Treatment. Let's Change That.

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