EVENT UPDATE
While COVID-19 has disrupted so much, including our ability to have an in-person event this year, the culture of Change for Charley and EB Research Partnership (EBRP) is to let nothing not stop us from funding vital life-saving research to cure EB. Therefore, we are excited to announce that in lieu of our gala this year, we will be fundraising in support of Venture Into Cures, a virtual event led by EBRP Co-Founders Jill and Eddie Vedder on November 18, 2020 at 8pm EST.
The show will feature uplifting stories of individuals with EB and their families along with celebrity friends Judd Apatow, Laura Dern, Jimmy Kimmel, David Letterman, Adam Levine, Keb' Mo', Gaten Matarazzo, Lukas, Micah, & Willie Nelson, Luis "King Kong" Ortiz, Adam Sandler, Renée Zellweger, and many more! Streamed globally by Amazon and hosted in perpetuity on EBRP’s website and social channels, Venture Into Cures provides the opportunity to reach 1M+ people and is packed with noteworthy moments like the debut of a brand new song by Eddie Vedder inspired by EB stories.
The show will feature uplifting stories of individuals with EB and their families along with celebrity friends Judd Apatow, Laura Dern, Jimmy Kimmel, David Letterman, Adam Levine, Keb' Mo', Gaten Matarazzo, Lukas, Micah, & Willie Nelson, Luis "King Kong" Ortiz, Adam Sandler, Renée Zellweger, and many more! Streamed globally by Amazon and hosted in perpetuity on EBRP’s website and social channels, Venture Into Cures provides the opportunity to reach 1M+ people and is packed with noteworthy moments like the debut of a brand new song by Eddie Vedder inspired by EB stories.
