EVENT UPDATE
While COVID-19 has disrupted so much, including our ability to have an in-person event this year, the culture of Change for Charley and EB Research Partnership (EBRP) is to let nothing not stop us from funding vital life-saving research to cure EB. Therefore, we are excited to announce that in lieu of our gala this year, we will be fundraising in support of Venture Into Cures, a virtual event led by EBRP Co-Founders Jill and Eddie Vedder on November 18, 2020 at 8pm EST.
The show will feature uplifting stories of individuals with EB and their families along with celebrity friends Judd Apatow, Jon Batiste, Alessia Cara, Bradley Cooper, Andra Day, Laura Dern, Billie Eilish, Glen Hansard, Chris Hemsworth, Jimmy Kimmel, David Letterman, Adam Levine, Gaten Matarazzo, Keb' Mo', Lukas Nelson & Promise of the Real with Micah, & Willie Nelson, Luis "King Kong" Ortiz, Adam Sandler, and Renée Zellweger! The show will be streamed for free at www.ventureintocures.org, www.pearljam.com, and the following Facebook pages and YouTube channels: EB Research Partnership, Pearl Jam, Eddie Vedder, and nugs.net.
The show will feature uplifting stories of individuals with EB and their families along with celebrity friends Judd Apatow, Jon Batiste, Alessia Cara, Bradley Cooper, Andra Day, Laura Dern, Billie Eilish, Glen Hansard, Chris Hemsworth, Jimmy Kimmel, David Letterman, Adam Levine, Gaten Matarazzo, Keb' Mo', Lukas Nelson & Promise of the Real with Micah, & Willie Nelson, Luis "King Kong" Ortiz, Adam Sandler, and Renée Zellweger! The show will be streamed for free at www.ventureintocures.org, www.pearljam.com, and the following Facebook pages and YouTube channels: EB Research Partnership, Pearl Jam, Eddie Vedder, and nugs.net.
SPONSORWe have a range of sponsorship options available. Venture Into Cures provides the opportunity for your brand to reach 1M+ people. Click below to secure your sponsorship or download a PDF of our opportunities to share with your team.
*Please note that we can no longer acknowledge new sponsors in the program as of 11/12/20 |
DONATEMake your contribution to #healEB by clicking the button below. Thank you for your support!
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